Max had a great day yesterday, they had weaned him from 20ppm down to 2ppm on the Nitric oxide and were talking about switching ventilators today. He was down from 100% oxygen to 85%. He was tolerating us touching him being handled a little better.
This morning, Max was struggling with all the noise in the NICU. He was waking up a little bit as he has developed a tolerance for the sedation medicine and he started desatting and couldn't keep his blood pressure up. They put his nitric back up to 20 ppm and his oxygen back to 100% and added another blood pressure medicine. We are back to not being able to touch him and as little stimulation as possible. They have added another sedation medicine and are talking about changing the medicine so he doesn't have to get the medicine so often. His blood work and chest X-ray are looking better, now we just need him to physically get better
This is so much harder than when Kynlie was in the NICU. Here we were expecting to take a big healthy baby home in a couple days and we have barely got to touch him or see his face. Dr F did say he is finally stable, but he still isn't doing great.
The girls are being troopers. We found a waiting room on the NICU floor that has a tv in it so they can at least watch some Dora or Mickey Mouse while they are waiting for Neil or I to be in with Max. They are coloring a lot of pictures and getting a lot of snacks to keep them occupied!
We are all praying for little Max to get well, and for God to give you and Neil the strength to get through this. The power of prayer is amazing, and a lot of people are on the prayer chain, so I am sure he will be doing better by leaps and bounds :)
ReplyDeleteMy heart goes out to you. We are praying for Max to get better and for your family. Its gonna be so wonderful when you get to bring that big boy home and snuggle him all you want :)
ReplyDeletePraying for you all. Thinking of you and let us know if we can help.
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